Thomasville Times Enterprise

Homepage

November 30, 2012

Loving a child on the fringe

(Continued)

PARIS —

This scruff-holding is more than physical; it is medical and mental. After spending her first year of life with serial lung infections, Eurydice evolved a frequently fatal leukemia — another risk factor of Down syndrome, albeit a rare one.

Six months of outpatient blood transfusions gave way to seven months of inpatient chemotherapy. During this period there was no exit from the hospital isolation room for either of us. Several times Eurydice hovered on the edge of death. She lost her long chestnut-colored locks and saw her satin baby chest carved up to make room for three consecutive catheters. Still today, there is a garish scar over her heart across which — either in obedience to a subconscious sense of theater or in memory of the nurses who applied disinfectant to her wound — Eurydice likes to smear blood-red lipstick.

It is sometimes said — and Solomon's book often echoes this bias — that autism is mysterious, Down syndrome is not. Autists are prodigies, introverts, misunderstood; people with Down syndrome are just dumb and dull. And yet, Eurydice has always been mysterious to me. To this day she does not speak — or, rather, she does not speak any publicly recognized language. But she has an enormous amount to say, uncanny capacities for observation, and startling social intelligence. In the French-English-German universe she inhabits, she has invented a vernacular all her own in which she makes orations so self-assured, well-inflected, and precisely punctuated by rhetorical gesticulation that strangers often inquire which language it is she's speaking.

Wherever she goes, she brings people together — imperiously gesturing to cantankerous couples to sit down together and lifting their palms onto each others' thighs, reconciling warring classmates by joining their hands, and charming child-leery adults with flirty smiles and studious imitations of their idiosyncrasies. Her gifts are the opposite of my own: Where I am shy, she is bold; where I am good with (known) words, she is good with drama, dance and music; where I am frightened of groups, she loves them, and the children in her preschool compete hard to sit by her side at lunchtime as the nurses in her hospital petitioned to be assigned to her room.

Text Only
Homepage
Harper

Ken Harper admires trophies won the by the Yellow Jackets during his coaching career.

Local News
water lift

Heavy equipment lifts three, 20,000-pound sections of the lift station into place across from Cherokee Lake on Smith Avenue.

Calendar of events
Local Sports
Obituaries
Business Marquee
House Ads
Hyperlocal Search
Premier Guide
Find a business

Walking Fingers
Maps, Menus, Store hours, Coupons, and more...
Premier Guide
AP Video
Crashed Air Algerie Plane Found in Mali Israel Mulls Ceasefire Amid Gaza Offensive In Case of Fire, Oxygen Masks for Pets Mobile App Gives Tour of Battle of Atlanta Sites Anti-violence Advocate Killed, but Not Silenced. Dempsey: Putin May Light Fire and Lose Control Arizona Prison Chief: Execution Wasn't Botched Calif. Police Investigate Peacock Shooting Death Raw: Protesters, Soldiers Clash in West Bank Police: Doctor Who Shot Gunman 'Saved Lives' 'Modern Family' Star on Gay Athletes Coming Out MN Twins Debut Beer Vending Machine DA: Pa. Doctor Fired Back at Hospital Gunman Raw: Iowa Police Dash Cam Shows Wild Chase Obama Seeks Limits on US Company Mergers Abroad Large Family to Share NJ Lottery Winnings U.S. Flights to Israel Resume After Ban Lifted Official: Air Algerie Flight 'probably Crashed' TSA Administrator on Politics and Flight Bans Raw: National Guard Helps Battle WA Wildfires
Twitter Updates
Follow us on twitter
Photos


Poll

Do you believe Israel's invasion of Gaza is justified?

Yes
No
     View Results
NDN Video
Deja vu: Another NYPD officer choke-holding a suspect 'Fifty Shades of Grey': Watch the Super Sexy First Trailer Now! Reports: Ravens RB Ray Rice Suspended For 1st 2 Games Of The Season Chapter Two: Becoming a first-time director Air Algerie plane with 119 on board missing over Mali Diamond Stone, Malik Newman, Josh Jackson and others showcase talent Free Arturo - The World's Saddest Polar Bear A Look Back at Batman On Film Through The Years LeBron James -- Dropped $2k On Cupcake Apology ... Proceeds To Benefit Charity Snoop Dogg Says He Smoked Weed at the White House Raw: Fight Breaks Out in Ukraine Parliament Chris Pratt Interrupts Interview To French Braid Intern's Hair Shirtless Super Mario Balotelli Dances While Ironing - @TheBuzzeronFOX Whoa! Watch "Housewives" Star Do the Unthinkable LeBron apologizes to neighbors with cupcakes Justin Bieber In Calvin Klein Underwear Shoot Samsung Pre-Trolls The IPhone 6 With New Ad Jimmy Kimmel Introduces His Baby Girl Swim Daily, Nina Agdal in the Cook Islands Guilty Dog Apologizes to Baby for Stealing Her Toy